Last week, we as a family, started sign language lessons to open up your world of communication quicker. We hope that this makes it easier for you to express your feelings and desires. We are only learning basic functioning signs as of now. The kids are really enjoying the signing and Joy teased me yesterday with signing "I love daddy more." Seriously, Joy!? Eli had fun with asking "more milk please", and Anna and Ezra are enjoying trying to spell things with the alphabet!
I have a stack of books that I'm reading about a possible condition you may have. I am about to start a PECS book for you to help you get across what you want, need or feel in hopes that your language will explode and we can throw it away. I'm not putting a label on you. I did so immediately and that wasn't right. Once the words left my lips, they're out there floating around for eternity, and I hate that. We don't know why your language is delayed and why you are doing stimming behavior. We don't know if you've been meticulously cared for or completed neglected. We can, however, see your world around you in the videos and it doesn't seem positive by any stretch of the imagination. But, I'm not putting you in a box. We won't know your needs until you are home and we are ok with that. We have to be ok with that! I hate you've been waiting since the day of your birth. I hate that you aren't getting therapies that you need. I hate you aren't sitting at a table for dinner with your family. I hate that you aren't exploring the world around you - splashing in puddles, creating sidewalk chalk art on our sidewalk, or blowing bubbles in the wind with your family. But, I have to remember that you will be very soon!!!! We are preparing for the worst and praying for the best. So many possibilities of what could be going on by two videos and a couple of pages about your life. It isn't right that a we have is a couple of pages. You are so much more than that!!!! You deserve so much more. You'll have everything you could deserve soon. We are working, learning, preparing, and waiting for God to say "GO"! We will never be more happy to hear those precious words.